Well thank God for no cancer and some direction! Praying for your continued healing.We're back home! Great Falls never looked so good! Still nursing my left side (where they did the lung biopsy), and that jostling plane ride wasn't any fun...but made it!
OK, here's the skinny...... as before the biopsies came back with NO CANCER..... just that same old "Nodular Lymphoid Hyperplasia". What we did learn new is that most who have it, have only one or two "nodules", where as both my lungs are splattered with them. Next, I have some fibrosis in my right lung, which is preventing my lungs from transferring Oxygen like they should. 95-96% on O2 sat is normal, mine is 90-92%. The amount of immunoglobulin in my system is 3X what it should be.... so autoimmune disease is a given.
When the Rheumatologist saw the immunoglobulin numbers, he freaked out a bit..... saying we have to get that down. When I asked him to explain, he said it's the same on my body as running 2 marathons a week.... with no recover time in between.....basically that my body is destroying itself. Good news is he is putting me on a new medication that he says has been working wonders for autoimmune stuff, and even though it might take a few months, he believes the meds will get the autoimmune stuff under control. Also got a bonus in that the med is know to significantly reduce, or halt fibrosis in the lungs.
No magic bullets, BUT..... FINALLY we have a direction, and more importantly, some hope.... PRAISE GOD!!
Now comes the hard part. Since I'll never be done dealing with this disease, I'm going to have to learn how to deal with it. I suspect my knifemaking will now have to be as my body will allow, versus when I want. Not sure if I'll be able to continue teaching classes, but if I do, those will have to be scaled back to what I'm physically able to do....right now I'm thinking no more than one per month, with 2-3 weeks between any classes. On the up side, I don't think KMT will die. Tim and Mandi picked us up at the airport yesterday, and we're already talking about future videos!!
So, we're back home, still far from being "well", but hopefully headed that direction, and doing the best we can. Again, heart felt thanks to everyone for your prayers, well wishes, and support. All my knife friends have been a true blessing, and I can only hope to return the favor one day!